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Retina UK
Services and organisations that have the Local Offer flash have filled out inclusion information, meaning that they meet the needs of people with Special Educational Needs and Disabilities (SEND)

Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.

We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.

Helpline: 0300 111 4000 – Our helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.

Talk and Support – For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.

To find out more about the telephone, online, and face-to-face services offered by Retina UK please visit our website: www.RetinaUK.org.uk.

Who to contact

Contact name
Denise Rawding
Contact position
Information and Support Coordinator
Telephone
01280 821334
E-mail
services@retinauk.org.uk
Website
https://retinauk.org.uk/
Facebook
Retina UK's facebook page
Twitter
Retina UK's twitter page

Where to go

Name
Retina UK
Address
Wharf House
Stratford Road
Buckingham
Postcode
MK18 1TD

Other details

Availability

Referral required
No

Inclusion details

Other local or national support

for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.

Last updated: 01/04/2022

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