Search Results (15 Service pages)
The Fellowship is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families. For more information visit the website.
Welcome to Ataxia UK. We are the leading national charity in the UK for people affected by any type of ataxia. We fund research into finding treatments and cures, offer advice, information and support.
Founded in 2001, Cerebra is a unique national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support. For more information visit the website. https://www.cerebra.org.uk/help-and-information/guides-for-parents/
The CJD Support Network is a patient support group providing help and support for people with all strains of Creutzfeldt-Jakob disease, their carers and concerned professionals. For more information visit the website.
An informal group for people of all ages with TS and associated tic disorders, along with their families, to come and meet in a relaxed, informal setting and share support and advice. The meeting is for all ages, whether you are looking to meet others…
We aim to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them. For more information visit the website.
The Haemophilia Society is the only national and independent organisation for all people affected by bleeding disorders. For more information visit the website.
Information, advice and support for people affected by Huntington's Disease. Local advice available on 01579 345480.
01579 345480 0151 331 5444
The Neuro Foundation’s vision is to improve the lives of those affected by Neurofibromatosis. Everyday a baby is born in the UK with Neurofibromatosis. There are over 25,000 people in the UK affected by the condition and as yet, there is no cure. For more…
Rett syndrome is a rare neurological disorder affecting mainly females and very few males. Although present at birth, it is usually undetected until major regression occurs at around one year of age, when children will lose acquired skills - this can be accompanied by distress…