Skip to main content

Search Results (14 Service pages)


newlocalofferchannelGenetic conditionRemove

    Filter by

    • (1)
    • (12)
    • (1)
    Offering services to:
    • (6)
    • (5)
    • (4)
    • (9)
    Supporting people with:
    • (1)
    • (2)
    • (3)
    • (9)
    • (1)
    • (13)
    Carers reduced rate:
    • (1)
    Service has Local Offer:
    • (2)
    Local Service:
    • (2)
    • (1)

    The Family Information Service are not responsible for the content of information on the Service Directory. Any information and updates are solely the responsibility of the page owner.

    Some of the events and services advertised on this website may have a limited offer at this time.

    Albinism Fellowship

    The Fellowship is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families. For more information visit the website. 

    Ataxia UK

    Welcome to Ataxia UK. We are the leading national charity in the UK for people affected by any type of ataxia. We fund research into finding treatments and cures, offer advice, information and support.
    08456 440606


    Founded in 2001, Cerebra is a unique national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support. For more information visit the website.

    CJD Support Network

    The CJD Support Network is a patient support group providing help and support for people with all strains of Creutzfeldt-Jakob disease, their carers and concerned professionals. For more information visit the website.

    Genetic Alliance Uk

    We aim to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them. For more information visit the website.

    The Haemophilia Society

    The Haemophilia Society is the only national and independent organisation for all people affected by bleeding disorders.  For more information visit the website.

    Huntington's Disease Association

    Information, advice and support for people affected by Huntington's disease. For advice call 0151 331 5444.

    The Neuro Foundation (Formerly The Neurofibromatosis Association)

    The Neuro Foundation’s vision is to improve the lives of those affected by Neurofibromatosis.  Everyday a baby is born in the UK with Neurofibromatosis. There are over 25,000 people in the UK affected by the condition and as yet, there is no cure. For more…

    Rett UK

    Rett syndrome is a rare neurological disorder affecting mainly females and very few males.  Although present at birth, it is usually undetected until major regression occurs at around one year of age, when children will lose acquired skills - this can be accompanied by distress…
    01582 798911

    Sleep Wise

    Sleep support for disabled children/ children with additional needs and for children with mental health issues through CAMHS You can access this service  via a referral from your child's paediatrician or from CAMHS. Private self funded support is also available Sleep Wise is managed by…
    07401 149973 07484 826546
    Services and organisations that have the Local Offer flash have filled out inclusion information, meaning that they meet the needs of people with Special Educational Needs and Disabilities (SEND)
    Back to top
    Powered by Open Objects ©