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The Society for Mucopolysaccharide Diseases (the MPS Society) is the only UK charity supporting individuals and families affected by MPS and related diseases. These are progressive, life limiting genetic conditions. For more information visit the website.
0345 389 9901
SWAN UK (Syndromes Without A Name) is an initiative run by the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. For more information visit the website.
020 7831 0883
Who we areThere are thousands of children and young people in the UK living with a long-term or complex health condition. WellChild is the national charity working to ensure the best possible care and support for all these children and their families wherever they are…
We aim to be the first point of contact for individuals with Williams Syndrome, their families and professionals needing support and information regarding the Syndrome. We actively support research into the educational, behavioural, social, scientific and medical aspects of the Syndrome. For more information visit…